What it is...
( ...you really thought this page was about Me?)
A chronic, often debilitating disorder of unknown cause, which affects the brain and the immune system.|
Characterized by extreme fatigue and muscle pain due to exercise, and cognitive disorders.
Full name: Chronic Fatigue and Immune Dysfunction Syndrome (CFS/CFIDS).
In some countries, it has a real name: Myalgic Encephalomyelitis (ME).
In fact, CFS and ME are probably distinct, although similar, illnesses.
The royal blue ribbon symbolizes the support to the cause of Chronic Fatigue Syndrome. It is also the symbol of free expression on the Internet...
To learn more about it
Will tell you everything you ever wanted to know. If you need more, there are plenty of excellent Web links. Maintained by Roger Burns.
Not updated since Sept. 2001.
THE source for scientific and medical news. Free, electronic monthly newsletter edited by Roger Burns from 1992 to Feb. 2001 (100 issues).
National ME/FM Action Network
Activism, legal aspects, etc. (Canada). The Action Network also has a
Parents and Youth Site
CFS on Natonal Capital Freenet
Another good resource, from Ottawa.
M.E.S.S. (Myalgic Encephalomyelitis Support Services)
Volunteer organization dedicated to helping those who suffer from ME/CFS. Canadian (Toronto), with many links to documents.
Lots of Help, Hope, upbeat thoughts from a Toronto patient!
CFS on Yahoo!
All the other good links...
So what about Me?
My name is Lucie Dorais, I was born in Montréal (Québec, Canada) and I now live in Ottawa, Ont. I have studied Art History, and worked for ten years at the National Archives of Canada.
My other passion is computers, especially programming.
I had to retire early because of C.F.S., and I have learned how to write software.
I now spend most of my time, when not too tired, working on my Morrice database.
And for those who wonder about the cat(s) in my life:
unfortunately, I am very allergic to real ones, so I had to give my last one, the wonderful
Ça-se-peux-tu? (61K), to friends, and I adopted
Neko, the virtual cat created by Masayuki Koba and Dara T. Khani.
(animation adapted from "Neko the Cat", created by Claude D. Bilbo):
Last updated: March 1, 2004